Banca de QUALIFICAÇÃO: DARLLA LAYSE TORRES DE LIMA

Uma banca de QUALIFICAÇÃO de MESTRADO foi cadastrada pelo programa.
STUDENT : DARLLA LAYSE TORRES DE LIMA
DATE: 22/03/2024
TIME: 15:00
LOCAL: Remoto
TITLE:

FRAMEWORK FOR CARE PATHWAYS OF AMYOTROPHIC LATERAL SCLEROSIS IN THE PUBLIC HEALTH NETWORK OF RN

KEY WORDS:

Amyotrophic Lateral Sclerosis. Care pathways. Standardization of flows. Public health network. Rio Grande do Norte.

PAGES: 80
BIG AREA: Engenharias
AREA: Engenharia de Produção
SUMMARY:

The complexity of rare diseases, exemplified by Amyotrophic Lateral Sclerosis (ALS), requires a specific approach from public policies and health services. The typical public health structure, designed for common diseases, may not be suitable for meeting the needs of patients with ALS due to its complex nature. The effective delivery of health services to these patients necessitates multidisciplinary care with collaboration, coordination, and transition among various health professionals and services. To promote quality care, it is crucial to structure health services through Care Pathways, which play a key role in the organizational care within health networks. This encompasses different care processes, health units, and levels of attention through care flows. Given the need to ensure comprehensive, coordinated care along the care pathway, it is necessary to map and organize care flows, from the patient's first contact with the health system to the conclusion of treatment or follow-up. Therefore, this research aims to propose a framework for standardizing care pathways for ALS patients in the public health network of the state of Rio Grande do Norte. The research procedure was divided into three phases: (i) theoretical foundation, conducting a Systematic Literature Review based on the PRISMA method; (ii) identification and characterization of care processes and flows for ALS patients, based on literature data, public health database of RN, and interviews with professionals directly involved in the care of ALS patients; and (iii) construction and validation of the care flow framework for public health network patients with ALS, based on the RarERN Path methodology and the Delphi Method. The expected results include the development of a framework with consolidated and validated care flows by a team of specialists. These flows should be patient-centered and focused on their care journey. Additionally, this structure is expected to standardize the patient's pathway through the health care network and improve the coordination among different professionals involved in care. Finally, the proposed framework could be used as a concrete subsidy in implementing a specific Care Pathway for ALS and serve as a model to address challenges related to other rare conditions.

COMMITTEE MEMBERS:
Externo à Instituição - DAYSE KARENINE DE OLIVEIRA CARNEIRO
Externa à Instituição - DIANA PAULA DE SOUZA REGO PINTO CARVALHO
Interno - 1086657 - JOELTON FONSECA BARBOSA
Presidente - 1777131 - MARIANA RODRIGUES DE ALMEIDA